Home eMix Blog Clinical Data-Sharing 20 Years Ago – and Today

Clinical Data-Sharing 20 Years Ago – and Today

August 08, 2011
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A recent edition of HIStalk, an online blog about healthcare IT, tells an inspiring story about the ability of IT to prevent catastrophic health outcomes. But it is also a cautionary tale about the primitive state of clinical data sharing today – except where cloud-based sharing is used.

The story, which took place in 1993, concerns the daughter of Ed and Julie Marx. Ed is currently CIO at Texas Health Resources in Dallas/Ft. Worth, but at the time, he was working as the physical relations coordinator at a hospital where Julie had just given birth. The newborn, Talitha, suffered from pneumonia and a hole in her stomach from a Strep B infection. The attending physicians predicted, to the Marxes' dismay, that the problems would leave their daughter physically and mentally impaired.

Talitha's best chance, the Marxes were told, was to be seen by specialists at the region's Level 1 NICU. The hospital was 90 minutes away, however, and the trip was risky for Talitha in her condition. Alternatively, the specialists were willing to consult at a distance, but only if they could access her records remotely.

Fortunately, during the previous year, the IT department had implemented technology that allowed doctors to dial in on a modem and get real- time access to clinical data. Ed worked on the project, too. Now, with his daughter's health on the line, he suddenly saw a new use for the system: Giving the specialists from the Level 1 hospital access to Talitha's records.

With Ed's urging, the proper wheels were set in motion. Access was accomplished in about two hours, beginning the clinical collaboration between the Level 1 specialists and Talitha's doctors. Treatment was so successful that the predicted impairment was averted. Today Talitha is a healthy, bright child unmarked by the near-tragedy of her first days.

That's the good news. Here's the cautionary note: Even though this drama took place nearly 20 years ago when IT was less advanced, most hospitals still have no efficient way to share clinical data if their IT systems don't talk to each other. In fact, at many hospitals, the options are far worse than what the Marxes faced. The files would have to be burned to CD and sent with the patient, which means the patient would have to take that risky trip to the Level 1 center instead of physicians collaborating remotely.

The primary exceptions are hospitals that have implemented cloud-based systems such as eMix. Today, Talitha's records could be accessed in a few minutes, not hours, via the cloud. Now that cloud-based data-sharing has arrived, hospitals everywhere have the ability to immediately share patient data in emergency situations. There is no longer an excuse for doing otherwise.

Last modified on August 24, 2011

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